Meet "Betty the Bald Chicken -- Lessons in How to Care"

Jan 03, 2024 5:15 am

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weekly with news of our latest author, podcast, and events to guide the dementia caregiving journey. Feel free to share what you see here with

others concerned about Alzheimer's and dementia. Please stay with us.


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Hello ,


Lori La Bey is the author of this weekโ€™s featured book, โ€œBetty the Bald Chicken โ€“ Lessons in How to Care.โ€


In her words, the idea โ€œcame to me in a dream, about twenty-five years into my family's journey with dementia. My mother Dorothy lived a total of thirty years with the disease and as they say, dementia is not a disease of one. Itโ€™s a disease of society.โ€ 


โ€œBetty the Bald Chickenโ€ is much more than a childrenโ€™s book about dementia and Alzheimerโ€™s disease. It is a story about love and acceptance. It addresses feelings of not belonging or fitting in, being misunderstood and ignored. I would venture a guess that most of us have felt one or more of these emotions in our lives. And, as caregivers, we may have also watched as our loved with one with dementia was discounted, talked over or simply ignored. 


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Lori shares: โ€œBetty the Bald Chicken teaches people of all ages we have more in common with others than we are different. The questions in the back of the book help readers and listeners talk about the ripple effect our choices have on ourselves and others; even those we don't know.โ€

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Read more




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The podcast returns January 10th when Marianne and Christy interview Andrea Couture, author of the memoir โ€œEmbracing What Remainsโ€ and a member of our management team specializing in acquisitions and moderating our new book club (see below). In the meantime, catch up on any episodes you may have missed. Listen on:  AlzAuthors Website ~ Amazon Music ~ Apple Podcasts ~ Deezer ~ Google Podcasts ~ Listen Notes ~ Pocket Casts ~ Podchaser ~ Spotify ~ Tune In ~ Whole Care Network



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New in January: A Book Club with Aging & Amazing

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We're excited and honored to announce we're partnering with the online community Aging & Amazing to begin a monthly book club, a โ€œMeet the Authorโ€ type of event, starting in January. Andrea Couture, author of the memoir Embracing What Remains, will moderate. We will feature a new book and author every month. Here's the schedule through April:

 

  • January 30th 7 pm EST: Andrea Couture - Embracing What Remains: a memoir
  • February 27th 7pm EST: Florrie Munat - Be Brave: A Wife's Journey Through Caregiving
  • March 26th 7 pm EST: Ruth Stevens - Stage Seven, a novel
  • April 30th 7 pm EST: A collection of poets for National Poetry Month, including Sherri Levine - Stealing Flowers from the Neighbors; Daniel Potts, MD - Bringing Art to Life, and Margaret Stawowy - Storms of the Inland Sea

 

To learn more about this book club or to become a member, please visit agingamazing.com.


Register here to get the link to the Zoom meetings.

 

In their own words, Aging & Amazing, based in Washington DC, is โ€œan online community, in addition to local, in-person care management and training services supporting older adults, caregivers, and professionals specializing in aging. Aging & Amazing offers a helping hand to uplift older adults, caregivers, and professionals through services, education, and support.โ€



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A Glimpse Into Dementia from Peter Berry

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In this less than two minute snippet from BBC Radio 4, AlzAuthor Peter Berry, who lives well in the UK with early onset Alzheimer's, gives us a glimpse into his memory and its challenges. Sue Mitchell interviewed Peter on December 31st as part of her documentary "Finding My Father." Peter is a powerful advocate for those living with dementia, speaking across England at conferences and summits, appearing in the media, and raising money for dementia charities through cycling challenges. From his website: Peter has a vivid way of viewing his dementia which helps others to understand. He describes his videos as "opening the curtain that surrounds his dementia and letting people into his world." He is the author of Slow Puncture: Living Well With Dementia and Walk With Me: Musings Through the Dementia Fog with his friend and co-author Deb Bunt.


Listen here!



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Susanโ€™s Design of the Week

New is the year, new are the spirits, and new are the hopes and warm wishes for a promising and fulfilling 2024. Happy New Year from all of us at AlzAuthors! https://alzauthors.com/


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Please share with your friends and followers.


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We have so much to learn ...


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The process of finding new treatments for Alzheimer's disease is one of trial and error โ€” and every "failed" trial generates invaluable new data to help researchers and drug developers understand what works, what doesn't, and why. In this Live Talk, weโ€™ll meet drug trial participant Bill Sasse, who was a participant in Eli Lillyโ€™s clinical trial of experimental monoclonal antibody drug solanezumab. In March of 2023, solanezumab ultimately failed to hit its benchmarks in slowing cognitive decline and the trial was discontinued. Sasse, whose father died of Alzheimerโ€™s, had the unique experience of participating in a clinical trial for a MAB drug without having any symptoms of cognitive decline. With his wife as his trial partner, he participated in the solanezumab trial for eight years before it was announced that the clinical trial had failed. RSVP to this talk to learn more about the clinical trial experience with MAB drugs.

RSVP now!



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Honoring Caregivers

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Scotty Award Nominations Are Open

HFCโ€™s Scotty Award is named in honor of Scott Miller, who served as a loving caregiver to his wife Adele, late mother of HFC co-founder Lauren Miller Rogen and HFC board president, Dan Miller. The Scotty Award honors both family and professional dementia caregivers, and recognizes patience, perseverance, and creativity in the face of dementia. Award recipients will be announced at CareCon on Wednesday, February 14, 2024.

Nominate Here!



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Our mission is to provide quality resources for those concerned with Alzheimerโ€™s and dementia. Please help by connecting with us in at least one new way this week:


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Thank you for supporting our mission to connect caregivers with resources.

 

Your Management Team

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L to R: Marianne Sciucco, Jean Lee, Vicki Tapia, Kathryn Harrison,

Ann Campanella and Susan Landeis.


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