Patience, Kindness, and Humor: Lessons from Caregiving with Vicki Tapia (Book Club Replay)
Jun 05, 2024 12:05 am
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Hello ,
In this latest episode of the Untangling Alzheimer's and Dementia Podcast, we delve into an incredibly heartfelt discussion with AlzAuthors founder Vicki Tapia, author of Somebody Stole My Iron: A Family Memoir of Dementia. Vicki shares her profound journey of caring for two parents with dementia, highlighting the emotional challenges and the importance of self-care for caregivers. We talked about the lessons in patience, respect, and kindness she learned along the way, and the humor that kept her going. It was a powerful reminder to embrace life's unpredictability and cherish every moment. Don't miss it!
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Catch up on Last Week's Episode
Last week's podcast is a replay of our April "Books & Chit Chat" with Aging & Amazing. We dove deep into the emotional and inspiring world of caregiving through the lens of literature and poetry with four of our authors: Sue Fagalde Lick, Sherri Levine, Daniel Potts, MD, and Margaret Stawowy. Listen as we explore the touching experiences of our guests who share their personal journeys and creative expressions shaped by the challenges of caring for loved ones with Alzheimer's and dementia.
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Coming Up Next
June 12 - Darlene Fuchs, author of Get in the Boat: A Memoir of Love, Loss, and the Dance with Dementia
June 19 - Podcast: Replay of AlzAuthors Live! LGBTQ+ Caregiver Concerns
June 26 - Mindy Couch, author of Understanding Dementia: A Learn and Earn Activities Book for Children
July 3 - Podcast: Sue Fagalde Lick, author of Gravel Road Ahead and No Way Out of This
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Our Poetry Anthology is Now Available!
Our latest anthology is a collection of poetry on the dementia journey from the authors who attended our National Poetry Month event last year. Here you will find a variety of voices writing from different stages of caregiving: pre-diagnosis, after the diagnosis, years of care, end of life, and beyond. You'll encounter voices from the many different caregiving situations: caring for a spouse or partner, a mother, father, grandparent, or sibling. You will experience the pain, fear, and joy that accompanies a dementia diagnosis, as well as the love and the loss. In Kindle and paperback on Amazon June 1st.
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Our June Book Club Selection is "Don't Forget to Dance" by Marc Alderdice
Please join us for our next book club discussion as we explore a memoir, Don't Forget to Dance, by Marc Alderdice. He shares the story of his Alzheimer's journey with his wife. Remember: it is not necessary to read the book to attend the discussion.
To learn more or to become a member, please visit agingamazing.com.
Register here to get the link to the Zoom meetings.
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AlzAuthors on The Beauty in the Mess Podcast
Marianne recently visited Michele Simms and The Beauty in the Mess Podcast. Marianne shared her personal story of how her Aunt Gilda's battle with Alzheimer's inspired her career in nursing and eventually writing. She discusses her novel Blue Hydrangeas, an Alzheimer's love story, which centers on a couple dealing with Alzheimer's, and the importance of accurately diagnosing dementia. Michele and Marianne explore the benefits of heart-healthy diets, social engagement, and the critical role of self-care for caregivers. Additionally, Marianne tells the story of AlzAuthors. Start listening!
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Take Action to Support The Age-Friendly Hospital Measure
AlzAuthor Michael Ellenbogen has lived with early-onset Alzheimer's since 2008, diagnosed at age 49. He works tirelessly as an advocate for Alzheimer's and dementia research and awareness and has asked us to share his request for action on this important piece of legislation in the US Congress: The Age-Friendly Hospital measure (CMS-1808-P). It needs public support to pass, so please consider adding your support by June 10th.
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We have so much to learn β¦
On Wednesday, June 12th at 10 a.m. PT/ 1 p.m. ET, Dr. Maribeth Gallagher, director of Hospice of the Valleyβs dementia program, joins Being Patient Live Talks to discuss what people living with dementia and their loved ones need to know about hospice and palliative care. In addition to directing the Hospice of the Valleyβs dementia program, she also serves as an expert consultant for their palliative dementia care program. Her work with Hospice of the Valley has received national and international awards for its innovative approaches to dementia care. Gallagherβs focus on dementia care was initially inspired by her personal experiences as a family caregiver, sharing the journey with her loved one from diagnosis to death.
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Susan's Design of the Week
Please share this with your friends and followers on social media using the following text:
Reading before bed helps you to de-stress and wind down for a good night's sleep. AlzAuthors has hundreds of exceptional books of all genres to inspire, encourage and support you on the #dementia journey. https://alzauthors.com/
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Let's keep connected ...
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Our mission is to provide quality resources for those concerned with Alzheimerβs and dementia. Please help by connecting with us in at least one new way this week:
Follow our podcast and leave a review
Subscribe to our YouTube channel
Volunteer your time and talents
Submit Your Book, Blog, or other Resource
Buy a book (or books!) in the AlzAuthors Bookstore
Share this newsletter with others on a dementia journey
Visit us on The Whole Care Network
Check us out on the Health Podcast Network
Vote us up on the NYC Podcast Network
Check Out This Curated List of Alzheimer's Podcasts Featuring our Authors
Discover our authors in this podcast series on Alzheimer's
Purchase a Custom Caregiver Collection
Vote us up on the World Podcast Network
Listen to the podcast on Coming Home Well
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Thank you for supporting our mission to connect caregivers with resources.
Your Management Team
L to R: Marianne Sciucco, Vicki Tapia, Jean Lee,
Ann Campanella, and Susan Landeis.
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Submit your review here.
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