Dementia Care Around the World starts at 2pm!
Sep 13, 2022 4:31 pm
September is World Alzheimer’s Month
Thank you for registering for this important event
Join here:
https://us06web.zoom.us/j/86354813225pwd=NkJyN3FuRmtyc1pEYmFUK3NMZ3VBQT09
Meeting ID: 863 5481 3225
Passcode: 726241
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Meeting ID: 863 5481 3225
Passcode: 726241
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About the Event
In this AlzAuthors Live! Virtual Q&A we explore with three of our authors the similarities and differences caregivers and those living with dementia encounter as they seek care and search for solutions to the many questions and problems a dementia diagnosis brings. The authors featured in this event represent the United States, Canada, and Costa Rica. We hope their stories will inspire and empower you on your own dementia journey.
Potential topics for discussion
- obtaining a diagnosis
- accessing care
- community resources
- financial concerns
- insurance considerations
- home care, assisted living, long-term care
- stigma surrounding a dementia diagnosis
Event Details
- It will last one hour.
- The program will be recorded and added to our YouTube channel and podcast.
- The event is free but donations are welcome.
Meet Our Panelists
From the United States: Cindy Weinstein
Cindy Weinstein is the author of Finding the Right Words: A Story of Literature, Grief, and the Brain, the story of her journey with her father’s early onset Alzheimer’s. She says: “I studied neurology for a year at the University of California San Francisco and asked Bruce Miller, MD, head of the Memory and Aging Center, to write Finding the Right Words with me. My goal was to write a book that told the individual story of my father, his illness, me, a girl from New Jersey who loved literature, and also told a general story about people with dementia, their brains, and their caregivers. This would help people. Telling stories of my mother being stigmatized because people treated my father as if his illness were contagious would help others. It would give readers language to explain to others (and to themselves) what was happening in their loved one’s brain. Not everyone can go to UCSF to get a team of experts to provide a diagnosis and follow-up caregiving plan, and I wanted readers to have access to that knowledge, support, and empathy, all of which are essential for families to have.”
She has been a professor of English at the California Institute of Technology, where she currently holds the Eli and Edythe Broad Professor of English. At Caltech, she has had the great fortune to teach American literature to brilliant students, and to write several books along the way, including her most recent one, written with Dr. Bruce Miller, about her father’s early-onset Alzheimer’s.
From Canada: Donna Thomson
Donna Thomson is co-author with Dr. Zachary White of The Unexpected Journey of Caring: The Transformation of Loved One to Caregiver. She is also a caregiver and activist. The mother of two grown children, one who has severe cerebral palsy and medical complexity, she also helped care for her mother who lived with dementia until she passed away in the summer of 2018 at the age of 96. She says: “Our book seeks to help caregivers understand how caring for someone with Alzheimer’s or dementia is shaping them. We hope this new understanding of the caregiver identity, combined with a set of practical tools, will ease the burden of care for readers and reveal to them the strength and wisdom that comes with their care experiences.”
Donna is also the author of The Four Walls of My Freedom: Lessons I’ve Learned from a Life of Caregiving and blogs regularly at The Caregivers’ Living Room. She is a board director of the Kids Brain Health Network and is a leader and instructor in family engagement in health research. She also teaches families how to advocate for care at The Advocacy School and at Huddol.com.
From Costa Rica: Katya DeLuisa
Katya De Luisa is an artist, expressive arts program designer, freelance writer, and author with 20 years’ experience working with those living with dementia and their families. She firmly believes that when we change the way we look at something what we look at changes.
Katya’s experience working in long-term care facilities as both a caregiver and as an art director has given her a wealth of insight into the dementia diseases, family dynamics, communication, miscommunication, and more. Her passion is communicating with people in late-stage disease using the visual arts, collage in particular. She believes that no matter how advanced a person’s dementia may be there is still a person inside who is reachable if we use the right tools and methods.
She is the founder and director of the non-profit The Infinite Mind Dementia Project in Costa Rica, and the author of the book Journey Through the Infinite Mind: The Science and Spirituality of Dementia.
How to Help
We want to fill the Zoom Room as we believe these inspirational stories have much to offer caregivers regardless of where they live. Any assistance you can bring via your own network and platform is greatly appreciated. Please share our tweets and posts as you see them on social media, and pass this email on to your own friends, family, and followers.
Please contact alzauthors@gmail.com with any questions or concerns.
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