Podcasthon - The Long Haul: The Impact of Long-Term Dementia Caregiving
Mar 15, 2025 8:45 pm
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Hello ,
Have you heard of Podcasthon? Itβs an incredible and fast-growing non-profit initiative uniting thousands of podcasters from 47 countries in supporting their favorite charities. Podcasthon.org is about convincing as many hosts as possible to dedicate one episode of their show to a charity of their choice and to release these episodes simultaneously, in a coordinated effort, March 15-21, 2025, creating a massive and international wave of inspiring audio content.
The objective? To raise awareness for a huge number of charities worldwide.
Our favorite charity is us. This bonus episode is our contribution to Podcasthon. Please support our mission to provide quality resources for dementia caregivers at AlzAuthors.com/donate. Thank you!
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In this heartfelt and deeply insightful episode of the Untangling Alzheimerβs and Dementia podcast, hosts Marianne and Christy engage in a comprehensive discussion about the long-term impact of caregiving for loved ones with Alzheimer's and dementia with four former caregivers. The conversation revolves around the multifaceted challenges caregivers face, including the emotional toll, physical strain, financial burdens, and social isolation.
Each panelist shares their unique caregiving journey, illustrating the diverse experiences and universal themes that caregivers encounter:
- Loretta Woodward Veney highlights the complex emotions intertwined with caring for her mother while navigating personal losses.
- Jean Lee discusses the overwhelming sense of guilt and responsibility she felt during her caregiving years with her parents.
- Ann Campanella reflects on her journey, balancing caregiving for her mother with personal grief and finding solace in writing.
- Dave Iverson discusses balancing work and managing finances while caring for his mother,
The discussion, a recent AlzAuthors Live! event, also covers the often-overlooked physical demands of caregiving, such as exhaustion and challenges in maintaining one's health and well-being. The panelists emphasize the importance of coping strategies like maintaining connections with friends, engaging in joyful activities, and prioritizing personal health to cope with these demands. Moreover, the financial aspect of caregiving is touched upon, with panelists sharing their struggles and strategies in managing costs associated with long-term dementia care. This episode brings to light the crucial need for better systemic support and planning in elder care.
Key Takeaways:
- The caregiving journey is unique to each individual, but common challenges include emotional, physical, financial, and social dimensions.
- Coping strategies such as exercise, maintaining social connections, and engaging in enjoyable activities are vital for caregiver well-being.
- Financial planning and understanding available resources are critical aspects of managing dementia care.
- Community support and shared experiences can provide much-needed comfort and guidance.
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In Case You Missed It . . .
Ever wonder if there's more to an Alzheimer's journey than sorrow and loss? Meet Marilyn Raichle, author of "Don't Walk Away: A Care Partner's Journey," who discovered a world of joy, connection, and art with her mom who had Alzheimer's.
In this episode, you will:
- Discover the therapeutic benefits of art for those with Alzheimer's and how it can enhance their well-being.
- Navigate the caregiving journey with dementia by learning effective strategies and finding support.
- Uncover the impact of Alzheimer's on family relationships and explore ways to strengthen and maintain connections.
- Find joy in dementia care by exploring uplifting and positive approaches to enhance the caregiving experience.
- Explore the power of creativity in Alzheimer's care and how it can positively impact the lives of all impacted.
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AlzAuthors Celebrates 10th Anniversary with All Home Care Matters Podcast
Members of the management team and several of the authors met with Lance Slatton, podcast host at AllHomecareMatters.com, recently for a lively discussion on our 10th anniversary and what AlzAuthors has meant to each of us. Thank you Lance and team for hosting this wonderful discussion.
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Coming Up for Book Club
Please join us for a discussion of Debra Tann's "The Race of Dementia." The title of the book serves as a double entendre. First, there is a race for a cure. Second, there is evidence that suggests Blacks and Latinos will make up nearly 40% of the 8.4 million American families affected by Alzheimerβs. Hence, it is literally The Race of Dementia.
Debra says, "My book emphasizes the question, who cares for the caregiver? What is more, the book addresses the age-old conundrum of race as it relates to the health care system. Disparities such as poverty, unequal access to health care, lack of education, and stigmas are underlying factors of health inequities."
Readers say:
"This is a great book that covers the many important topics of dementia. It provides colorful stories of those touched by dementia. It is written with hope and optimism knowing it will take all of us to raise awareness of dementia- together we are better. It is also a great resource for nursing students and provides interactive scenarios for great discussion."
"This read has opened my eyes to the many struggles associated with dementia (and related diseases), and need for caregivers to take time to care for themselves. Before The Race of Dementia, I never placed much thought on how important it was for me (a caregiver) to give myself permission to take a break... take a breath... take a minute, and not feel guilty about doing so."
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ο»ΏIn celebration of our 10th anniversary, we published a news release telling our story and outlining our plans for this momentous year. Here it is. Please share this with your family, friends, followers and contacts in dementia care.
Thank you.
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Take a Chance on Our 10th Anniversary Book Giveaway!
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ο»Ώ2025 Books & Chit Chat, Podcasts, and AlzAuthors Live! Virtual Events
3/19 - Replay of Books & Chit Chat with Susan Landeis on podcast and YouTube
3/25 - Books & Chit Chat with Debra Tann, Ed.D, The Race of Dementia, a caregiver guide
4/2 - NEW AUTHOR: David Bredbenner, Going Home, A Journey with Dementia, a memoir of caring for a mother
4/22 - Books & Chit Chat with Marita Golden. The Wide Circumference of Love, a novel
4/29 - AlzAuthors Live!: National Poetry Month Virtual Poetry Reading
5/7 - NEW AUTHOR: Carol Steinberg, Come Grandpa Meow, Letβs Fly, an illustrated children's book
5/27 - Books & Chit Chat with Peter Berry and Deb Bunt, Slow Puncture: Living Well with Dementia, a memoir, and Walk With Me: Musing Through the Dementia Fog, poetry
6/4 - NEW AUTHOR: Alfredo Botello, Spin Cycle: Notes from a Reluctant Caregiver
6/24 - Books & Chit Chat with Jean Lee, Alzheimerβs Daughter, a caring for two parents memoir
7/ 23 - SUMMER BREAK! No pods, no posts
7/ 30 - SUMMER BREAK! No pods, no posts
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Love Podcasts?
If you enjoy listening to podcasts, check out the resources for caregivers on the Whole Care Network's Streaming Radio App. You'll discover a number of informative and inspirational podcasts dedicated to the caregiving journey.
Available in the Apple store and Google Play.
Disclaimer: Our Untangling Alzheimer's and Dementia podcast is supported by the Whole Care Network.
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Susan's Design of the Week
Please share this image with your friends and followers on social media using the following text, copy, paste and hit send!
Caregivers juggle many roles and responsibilities, and it's difficult when things don't go according to plan. AlzAuthors provides valuable #Alzheimers and #dementia resources to help ease some of your burdens and offer support. https://alzauthors.com/
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Love our newsletter?
Please forward it to a family member, friend, or someone you know on a dementia journey. Share the news about our authors, their stories and books, and the valuable resources we offer: website, podcast, blog, and more.
Thank you.
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Let's keep connected ...
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Our mission is to provide quality resources for those concerned with Alzheimerβs and dementia. Please help by connecting with us in at least one new way this week:
Follow our podcast and leave a review
Subscribe to our YouTube channel
Join Books & Chit Chat book club
Volunteer your time and talents
Submit Your Book, Blog, or other Resource
Share this newsletter with others on a dementia journey
Visit us on The Whole Care Network
Check us out on the Health Podcast Network
Vote us up on the NYC Podcast Network
Check Out This Curated List of Alzheimer's Podcasts Featuring our Authors
Discover our authors in this podcast series on Alzheimer's
Purchase a Custom Caregiver Collection
Vote us up on the World Podcast Network
Listen to the podcast on Coming Home Well
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Thank you for supporting our mission to
connect caregivers with resources.
Your Management Team
L to R: Vicki Tapia, Ann Campanella, Christy Byrne Yates,
Marianne Sciucco, Susan Landeis, and Jean Lee
How to reach us:
Marianne Sciucco: podcast host/producer
mariannesciucco@gmail.com
Jean Lee: acquisitions editor, Custom Caregiver Collections
jean@alzheimersdaughter.com
Vicki Tapia: acquisitions editor, children's books
vicki.tapia@gmail.com
Ann Campanella: Custom Caregiver Collections
anncampanella@gmail.com
Susan Landeis: Custom Caregiver Collections
contact@susanlandeis.com
Christy Byrne Yates: podcast host/producer, YouTube channel manager
christy@cbyates.com
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Show us some love on Google
Share your thoughts on AlzAuthors with the world.
This helps caregivers find us on the crowded internet. Submit your review here.
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