Hi friends,

Jason is done with his 10 whole-brain radiation treatments, as of this afternoon! Here he is with a bit of confetti on his shirt (they threw it on him on the way out), holding his certificate and his mask.

About that mask … For every treatment, he had to lie on his back. They put this custom mask on him and screwed it onto the table to keep his head steady for treatment (which thankfully was very quick). Pretty bizarre!

Radiation has already helped with Jason’s symptoms, especially his headaches. He’s been able to use Tylenol the last few days instead of his stronger, prescription pain medication. He’s still dealing with fatigue, though not as intense as before.

Last Friday, we met with Jason’s medical oncologist. He was encouraged to see how much Jason had improved already. He said most of the effectiveness of radiation usually shows up after treatments are over. So we’ll be watching Jason over the next couple of weeks to see if his symptoms continue to subside. We’re hopeful that they will, based on how he’s doing now.

Even with these improvements, Jason’s life looks very different than it did a month ago. He’s not working, and we’re in the approval process for short-term disability. He needs a whole lot of rest, and I’m so glad he’s listening to his body and taking it easy.

Here’s our plan, after consulting with his medical oncologist last week:

• Lots of rest and family time through the holidays.
• Appointment early next week with a neuro-oncologist to discuss other treatment options. Jason may do systemic chemo (pill or infusion) and/or intrathecal chemo (injecting meds into the fluid in his brain, through his shunt).
• The final decision on our next step will be based not only on that doctor’s advice, but also on how Jason feels as the year comes to a close.

Some of you have reached out, wanting to visit. We really appreciate that, and Jason likes having company! If you’d like to visit, please reach out to me (Beth) to find a time that works. When you come, please be sensitive to Jason’s fatigue—long visits are fun, but they can leave him really tired.

Nineteen months ago today, Jason and I got his initial cancer diagnosis. It’s been a winding journey, and this current twist in our path is particularly hard. But we’re so, so grateful to have each other, God’s presence, and your support and prayers.

With love,

Beth and Jason

You're always welcome to look at past emails here. Just be aware this site includes my author and narrator newsletters as well as my emails about Jason; I can't split them up!