Neurorehab Engineering meets Parenting Realities - The Lived Experience
Jul 09, 2024 2:15 am
Dear ,
The caregiver burden for parents of children with disabilities is overwhelming. Crushing time demands of medical appointments, therapy sessions, research, administrative tasks, and constant care is just the tip of the iceberg.
As therapists, we struggle to make sense of what we should be paying attention to. Where to focus our time and dollars to up-skill and bring the best therapies available to our little clients.
The explosion of 'therapy porn' (the barrage of videos and images showing kids doing all sorts of therapies from the mind blowingly advanced technological breakthroughs to the weird and dubious and everything in between that flood our social media feeds) makes it challenging to tease out the hype from the gold.
But for parents, it's a whole different ball game.
The stakes are too high to ignore the next potential breakthrough and in a world of marketing gone mad - how do you choose what to expose your child to, or potentially deprive them of?
Well these are the exact questions we are covering in my next podcast interview with James Sulzer, PhD.
James is a rehabilitation engineer who has very personal experience with navigating these challenges for his own daughter who suffered a traumatic brain injury about a week before her 4th birthday.
Being an Assistant Professor of Mechanical Engineering at the University of Texas at the time gave James a unique advantage in navigating the research and evidence available in making decisions about what therapies were worth paying attention to - and in no way prepared him for the reality of the lived experience.
His publication: 'Our child's TBI: a rehabilitation engineer's personal experience, technological approach, and lessons learned' is a must read for every professional and parent and I am honored to be able to interview him for a WiredOn Development podcast.
What would you like me to ask James when I interview him at the end of this week?
But be quick - this interview is happening soon!
Warm regards,
Mindy