Softening the Edges: A Different Way to Live an Uncommon Life You Have to Inhabit a Life This Different in an Accordingly Different Way Transmute motherhood reshaped by autism & special needs into a life you genuinely LOVE inhabiting. A weaving together of a personal lifeline, honest letters, soulwork, & intimate community. |
I KNOW Your Name… Autism or special needs Mom: we may not have met personally before, but I don't have to know what your parents named you to call you out in this letter. I mean that I can open you up all the way down to your insides right now by addressing you by the emotion you're currently holding (and trying to force down) inside of yourself this very moment, but have been too afraid to say out loud before: “I HATE my life…” Am I close, Mom, or am I just correct? Now, allow me to continue recognizing just who you are: “If I knew then what I know now… My G-d. Life doesn't even feel real to me anymore… I love my child more than I have ever loved anything else, but I do also quietly dread my own life sometimes…” That's who you are, isn't it? I'm smiling right now, not because I'm holding you in judgement, but because I'm sharing with you that you're not nearly alone in this. All of the above (and more) reveals exactly who I am too. And it's not your failing. It is not a character flaw. These aren't just dramatic statements — they're the realizations you arrive at over and over again in the small, quiet moments where something in you goes very still and very heavy and says: “I did NOT sign up for this. I CANNOT keep doing this… I do not recognize the life I am living anymore.” What you're doing at such a time is beginning to name something specific beyond just the obvious burnout and grief we all know you carry — watching your own life happen to you from a slight distance while you simply “exist,” going through motions that you're not even sure are your own to begin with. And it's important that you name that, Mom. Please don't rush past it straight into a billion solutions that won't ever hold. You Have THIS Diagnosis You may not be living wrong, but there is a name for the source of your dread — and that “misalignment” should be reframed to feel inspiring rather than deflating. Conventional life has its own shape, seeded and nurtured in us long before we could design a life of our own: an accordingly conventional relationship to schedules, to rest and productivity, to what a “good week” looks like, and to how much of yourself you're allowed to want back. The strategies most other moms lean on are built for that shape of life. Autism and special needs motherhood has a completely different shape. A different relationship to time, because our children's needs refuse to operate on any schedule in existence. A different relationship to rest, because our exhaustion can't be relieved by sleep alone. A different relationship to planning, because our best-laid plans collapse in ways no planner has a column for. A different relationship to identity, because the diagnosis reshapes our child's life and our own at its arrival. Whenever you try to inhabit your life using tools designed for others, the result is nearly always dread — the sense of failing at something others manage fine, assuming something must be wrong with you. But you are not doing it wrong. You are using the wrong map for this terrain. You can only navigate the life you're actually living, not the one you were “supposed to” have. The dread is not a verdict — it's a compass, teaching you that something in the way you're inhabiting your life is misaligned with its unconventional nature. And your misalignment isn't a condemnation. It is an invitation to adjust — and that's inspiring, because there's something you can do with that information. This is the central truth of everything Little Alchemies is about. The Practice There are many practical modifications that can help simplify our reality — I call this “softening the edges” of your life. I don't call these “solutions,” because every life carries its own necessary weight, and this one carries more than most. Softening the edges is about removing everything that isn't part of that necessary weight — the extra obligations, the impossible standards, the things you do because conventional-life moms do them and you've never questioned whether they fit. Drawing from my days as an Online Business Manager, here are three methods: 1. Do Less, and Mean It Not as a temporary accommodation for a hard season, but as a permanent philosophical stance. The life you're living cannot hold what a conventional life can hold — not because you're less capable, but because it's a more demanding life. What can be released? What's on your list that was never really yours to begin with? Practical Modifications: Audit your schedule for obligations that produce more obligation than meaning. Identify social commitments that cost more than they restore. Release the domestic standards that nobody in your house actually needs. Say no to things that fit conventionally-shaped lives but not yours. Let the dishes sit in the sink when the alternative is your nervous system.
2. Get and Receive Help Without Guilt Like most moms, we've often internalized that asking for help is evidence we can't manage what others manage just fine. This story is both false and expensive. You were never meant to do this alone — no one was. This life, with its higher demands and more limited outside support, needs more help than a conventional life, not less. Practical Modifications: Identify one thing that could be delegated, hired out, or asked for this week. Practice receiving help without immediately reciprocating or minimizing. Join or build community specifically with women who understand this life from the inside — visit my community, The Lounge, free to join. Allow your child's other parent, a family member, or a support person to do something imperfectly rather than re-do it yourself. Name one human being who could hold something you've been carrying alone.
3. Automate and Tool What You Can Every minute spent on administrative friction is a minute not available for your actual life. The scheduling, the reminders, the logistics — the things that have to happen but don't require your presence, creativity, or emotional engagement. This isn't laziness. It's the intelligent reallocation of limited resources toward what does actually require you. Practical Modifications: Identify three recurring tasks that could be automated or simplified. Use grocery delivery, meal kits, or simplified meal frameworks to eliminate decision fatigue. Set up automatic bill pay, subscription management, and recurring orders for household staples. Use calendar automation for appointment reminders, medication schedules, and therapy tracking. Let go of manually managing anything that technology can hold.
The Mental Dedication You have to decide to inhabit this life. Everything above — the softening, the help, the automation — requires one thing underneath it to work: a decision from you. Inhabiting this life differently isn't something that happens passively. It doesn't arrive when circumstances finally cooperate (they never will). It's a practice, and like all practices, it begins with a deliberate, repeated, ongoing choice to show up for it. “I am going to inhabit this specific life, in this specific way, with this specific set of tools. Not because it is the life I would have chosen for myself, but because it is the only life available for inhabiting. I choose to live inside it rather than waiting at its edge.” That dedication isn't a one-time decision. It's made again on the hard Tuesdays, again after the appointment that didn't go the way it was supposed to, again when the dread returns — because dread in this life isn't a problem solved once, but a recurring visitor met with a recurring response. The response isn't “how do I escape this?” It's “what does this particular version of the dread need today?” And then the smallest possible softening, and a return to the dedication. That is the practice — not a transformation or an arrival, but an active practice. An Invitation: You are not failing at your life. You are living a life that is genuinely different from the ones most strategies, expectations, and self-help frameworks were designed for — and you've been trying to inhabit it using the instructions written for a completely different shape of existence. Your dread is not a verdict. It is a message. It is telling you that the fit is wrong, not that you are wrong. This life can be inhabited. Not perfectly, without the hard days and heavy seasons and recurring grief of what was imagined versus what is — but genuinely and honestly, with pockets of realness and aliveness and belonging that belong entirely to you. Soften the edges. Get the help. Make the decision again. You have to inhabit a life this different in an accordingly different way — and you are allowed to do just that. That is the whole invitation… |